My response to the “Modernising support for independent living: the health and disability green paper” – the Conservative government’s PIP consultation

The Conservative government recently (in the week commencing Monday 29th April 2024) launched a consultation on a green paper that they written called “Modernising support for independent living: the health and disability green paper”, which I have broadly called a consultation on personal independence payment (PIP).

Personal independence payment (PIP) is a non-means tested cash benefit which is paid to some disabled people after an assessment process with the stated aim of helping disabled people meet the extra costs of being disabled. It is currently paid 4-weekly in cash directly to the disabled person’s bank account. There are two elements to PIP daily living and mobility which can be awarded at a lower or higher (enhanced rate) with the lower and higher/enhanced rates being awarded different amounts of money each week. The current rates are available here https://www.gov.uk/pip/how-much-youll-get.

The consultation is available here https://www.gov.uk/government/consultations/modernising-support-for-independent-living-the-health-and-disability-green-paper/modernising-support-for-independent-living-the-health-and-disability-green-paper. Alternative formats for the consultation are available here https://www.gov.uk/government/consultations/modernising-support-for-independent-living-the-health-and-disability-green-paper.

The consultation is lengthy. I emailed a my response rather than submit it through the online form, partly because my response to the consultation is also lengthy. I have decided to share it here as it may be of interest to other people and I want to be open about what I said to the consultation. (I have included it in word format (primarily because I think that this may be helpful to people who use screen readers) and embedded below as a PDF document.

This post was last edited on Sunday 5th May 2024.

My physical health and related conditions

I have a number of mental health and related conditions (alongside other disabilities and health conditions).

I have listed them here as I intend on creating content about them, and their influence on my day to day life. I also want to be authentic and open about who I am and aim to destigmatise these conditions.

I have generally used medical terms.

My physical health and related conditions:

  • Blood and related conditions:
    • Folate deficiency anaemia.
    • Iron deficiency anaemia.
    • Vitamin B12 deficiency anaemia.
  • Circulatory system and related conditions:
    • Chronic nonparoxysmal sinus tachycardia/Inappropriate sinus tachycardia.
    • Hypertension.
    • Long QT Interval/Prolonged QT Interval.
    • Raynaud’s Phenomenon.
    • Right bundle branch block (RBBB).
  • Digestive system and related conditions:
    • Anterior open bite.
    • Bruxism.
    • Burning mouth syndrome.
    • Dental caries.
    • Enamel erosion of teeth.
    • Faecal incontinence.
    • Fissured tongue.
    • Gastro-oesophageal reflux disorder (GORD).
    • Geographic tongue.
    • Gingivitis.
    • Irritable bowel syndrome (IBS).
    • Levator ani syndrome.
    • Macroglossia.
    • Non-alcoholic fatty liver disease (NAFLD).
    • Postcholecystectomy syndrome.
    • Proctalgia Fugax.
    • Recurrent angular chellitis.
    • Temporomandibular joint disorder (TMJ).
    • Xerostomia.
  • Ear and related conditions:
    • Hyperacusis.
    • Tinnitus.
  • Endocrine and related conditions:
    • Folate deficiency.
    • HAIR-AN syndrome.
    • Hypercholesteremia.
    • Hyperuricaemia.
    • Infertility/Subfertility.
    • Iron deficiency.
    • Metabolic syndrome.
    • Obesity.
    • Polycystic ovary syndrome (PCOS).
    • Subclinical hypothyroidism.
    • Type 2 diabetes mellitus.
    • Vitamin B12 deficiency.
    • Vitamin D deficiency.
  • Genitourinary and related conditions:
    • Cervical ectropian.
    • Dysfunctional uterine bleeding (DUB).
    • Genito-pelvic pain/penetration disorder (GPPPD).
    • Menorrhagia.
    • Urinary incontinence.
    • Vulvodynia.
  • Immune system and related conditions:
    • Mast cell activation syndrome (MCAS).
  • Musculoskeletal and related conditions:
    • Chronic Achilles tendinopathy.
    • Ehlers-Danlos syndrome (EDS).
    • Fibromyalgia.
    • Gout.
    • Osteoarthritis (OA).
  • Nervous system and related conditions:
    • Carpal tunnel syndrome.
    • Cerebellar ataxia.
    • Chronic fatigue syndrome (CFS)/Myalgic encephalomyelitis (ME).
    • Chronic tension headaches.
    • Communicating hydrocephalus.
    • Friedreich’s ataxia.
    • Idiopathic intracranial hypertension (IIH).
    • Migraines.
    • Muscular dystrophy.
    • Occipital neuralgia.
    • Postural orthostatic tachycardia syndrome (POTS).
  • Respiratory system and related conditions:
    • Asthma.
    • Chronic breathlessness/dyspnoea.
    • Chronic sore throat.
    • Chronic tonsillitis.
    • Mixed rhinitis.
    • Postnasal drip (PND).
    • Tonsillar hypertrophy.
    • Upper airway cough syndrome (UACS).
  • Skin and related conditions:
    • Acanthosis nigricans.
    • Acne.
    • Atopic dermatitis/Eczema.
    • Chronic/Recurrent candida/dermatophyte/fungal type infections.
    • Folliculitis.
    • Hidradenitis suppurativa.
    • Hirsutism.
    • Hyperhidrosis.
    • Intertrigo.
    • Keratosis pilaris.
    • Psoriasis.
    • Seborrheic dermatitis.
    • Widespread skin tags.
    • Widespread stretch marks/striae.
  • Sleep-wake and related conditions:
    • Hypersomnia.
    • Insomnia.
    • Parasomnia.
    • Restless legs syndrome.
    • Sleep-related bruxism.
    • Sleep related leg cramps.
  • Visual system and related conditions:
    • Astigmatism.
    • Impairment of colour vision.
    • Impairment of contrast vision.
    • Impairment of light senstivity.
    • Myopia.
    • Subjective visual experience.
    • Vitreous opacities, membranes or strands.

f you want to connect with me, Twitter/X where I am, @IAmJessPlant is probably the best place at the moment.

You can choose to tip (please do not do so if it will cause you any financial difficulty) using my PayPal.me link.

My mental health and related conditions

I have a number of mental health and related conditions (alongside other disabilities and health conditions).

I have listed them here as I intend on creating content about them, and their influence on my day to day life. I also want to be authentic and open about who I am and aim to destigmatise these conditions.

I have generally used medical terms.

My mental health and related conditions include:

  • Anxiety and related conditions:
    • Agoraphobia.
    • Adult separation anxiety disorder.
    • Generalised anxiety disorder (GAD).
    • Panic disorder.
    • Social anxiety disorder/Social phobia.
  • Dissociative and related conditions:
    • Dissociative disorder.
  • Feeding and eating conditions:
    • Avoidant restrictive food intake disorder (ARFID).
    • Binge eating disorder (BED).
    • Other specified feeding or eating disorder (OSFED).
  • Impulse control and related conditions:
    • Intermittent explosive disorder.
  • Mood and related conditions:
    • Bipolar disorder (with depressive and mixed episodes)
    • Seasonal affective disorder.
    • Premenstrual dysphoric disorder (PMDD).
  • Obsessive compulsive and related conditions:
    • Body focused repetitive behaviour disorders (BFRBs).
    • Compulsive skin picking disorder/Dermatillomania/Excoriation disorder/Skin picking disorder.
    • Obsessive compulsive disorder (OCD).
  • Personality disorders:
    • Anxious avoidant personality disorder/Avoidant personality disorder.
    • Anankastic personality disorder/Obsessive compulsive personality disorder.
    • Borderline personality disorder (BPD)/Emotionally unstable personality disorder (EUPD).
    • Paranoid personality disorder (PPD).
    • Passive-aggressive personality disorder (PAPD).
    • Schizoid personality disorder.
    • Schizotypal (personality) disorder.
  • Stress and related conditions:
    • Complex post-traumatic stress disorder (cPTSD).

If you want to connect with me, Twitter/X where I am, @IAmJessPlant is probably the best place at the moment.

You can choose to tip (please do not do so if it will cause you any financial difficulty) using my PayPal.me link.

My learning and neurodevelopmental conditions

Photo by Tara Winstead on Pexels.com

I have a number of learning and neurodevelopmental conditions (alongside other disabilities and health conditions).

I have listed them here as I intend on creating content about them, and their influence on my day to day life. I also want to be authentic and open about who I am and aim to destigmatise these conditions.

I have generally used medical terms.

My learning and neurodevelopmental conditions include:

  • Attention deficit hyperactivity disorder (ADHD).
  • Auditory processing disorder (APD).
  • Autism spectrum condition (ASC) including what was known as Asperger’s syndrome, as well as pathological demand avoidance (PDA) syndrome/traits.
  • Developmental coordination disorder (DCD)/Dyspraxia.
  • Developmental learning disorder with impairment in written expression/Dysgraphia (including dyscravia).
  • Developmental learning disorder with other specified impairment/Nonverbal learning disorder (NVLD).
  • Developmental speech sound disorder.
  • Hypergraphia.
  • Hyperlexia.
  • Misophonia.
  • Partial prosopagnosia.
  • Sensory processing disorder (SPD).

As I mentioned above I have other disabilities and health conditions and plan on creating similar lists for mental health and physical health conditions.

I also plan on writing a blog post about how my learning and neurodevelopmental conditions overlap with each other, and with my mental health and physical health conditions.

If you want to connect with me, Twitter/X where I am, @IAmJessPlant is probably the best place at the moment.

You can choose to tip (please do not do so if it will cause you any financial difficulty) using my PayPal.me link.